
Welcome!
This is a website about understanding epilepsy.
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I created it because I believe there’s a need for plain-spoken, practical information about this
affliction, especially for the families and friends of people who have epilepsy.
I am one of those individuals, first diagnosed when I was 21 years old. But I am many
things, and do not use the term “epileptic” to describe myself. I have epilepsy but it does not
define me. There is just too much else to go for in life, however challenging it may be at times.
In my personal journey I have realized there are questions people have about this often
misunderstood condition. I have seen the discomfort and awkwardness in talking about it, or the
hesitancy to ask questions among those who have a person with epilepsy in their life –
questions which are quite understandable to ask.
I want to help overcome all that. There is no need to be misinformed, remain ignorant, or
to feel helpless when someone you know has a seizure or is diagnosed with epilepsy. For sure,
I am not a doctor or expert, but I do include information about professional resources. My hope
is that my personal experience, and from it my passion to create this website, may itself be
helpful to you and to others.
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So please start anywhere you would like and seize the knowledge!
